Keep on debating if I'm a slow burner or just haven't peaked yet. Mini flares continue EVERY day. Face, neck, hands and legs are the most common areas of discomfort. The awful night sweats have dissipated at the moment thankfully. Still have insomnia although taking Atarax every now and again helps (don't wanna build up a tolerance you see) energy levels fluctuate also.
Went to the Dermatologist recently to acquire about the possibility of starting Cyclosporine the immunosuppressant. Now I know the side effects are pretty hard core but it's getting to the point that I have no quality of life. If I'm not working I tend to remain in the house climbing the walls, ha ha. Sometimes I visit friends but my energy dictates that.
After doing a ton of research about Cyclosporine I feel the positives out do the negatives. I've read about people getting there lives back on track while taking the drug which is obviously very appealing. Even though the symptoms are still present there not as severe as the regular withdrawal phase. I miss getting a proper good nights sleep. I miss playing sports and hitting the gym. I miss going out and having fun with my friends. I feel like I'm in a stagnant period with no end in sight. My plan would be to start the meds and remain on them until the better weather returns.
Hell they might not even work as not everyone responds to them. I just feel it's worth a shot to try them out and get a break from the horrors that withdrawal offers. Will keep you posted as always anyway.
Below are some images of my troublesome hands.
Take care TSW friends. Speak to you soon.
Gary
Hi Gary,
ReplyDeleteHow did using cyclosporine go for you? I've been having red sleeves for 4+ months now and I'm so over it :-(
Tony.