Wednesday 21 December 2016

Month 33 - TSW Update

33 months deep. Not healed yet. The fight still goes on. Blah, blah, blah...

However, with all that being said my quality of life has returned, folks.

Firstly, feel like I should mention that I hope my duration of withdrawal hasn't discouraged or put you off in anyway. Remember we are all different. Some of us have been blessed with a stronger immune system, some of us have "used" longer than others, we've all slathered on to our skin all kinds of  different strengths of the steroid creams too. Some of us have even ingested oral steroids to add to our nightmare.

Words can often be cheap on the Internet. I guess what I am trying to get at is; KEEP on fighting!. Keep on going!. I know the darkness can swallow you up with this beast. But you have to keep heading towards the light. The light is happiness and a return to your birthright of a strong, happy and healthy YOU!.

Back to myself (like I mentioned above) I'm not quite there yet. It saddens me that I have to inform you that I took the plunge with starting immunosuppressants, Cyclosporine (Started the course on the 8th of November for the record). I'm well aware that a lot of you are against this option. However, trust me. For the sake of my quality of life, I had no other option. Have I messed up my healing time?. Truth be told?, I can't answer that (yet). All I know is that the imunno's are keeping my flares at bay and seem to be aiding with my recovery.

My plan is to stay on the meds for a good three or four months then discontinue. Hopefully my flares are much more manageable by then, until I reach the end that is. As we all know by now this TSW game is so random and weird.

Recorded a short video update. Had some near perfect skin days recently. As I said, I'm still not there. But, for sure I'm in a happier place, both mentally and physically.




All the best out there.

Good luck for 17'

Gary