Wednesday 29 October 2014

Just shy of eight months

Eight months is just around the corner for me and withdrawal (3.11.14)

Not getting any easier I'm afraid. Entered the dreaded second mega flare that other sufferer's talk about. I know this because when I first started the withdrawal my face was the first area of the body to react. It calmed down as the flare spreaded south as you can see from previous entries in my photos.

About two weeks into the six month stage my face started flaring again getting red with those small, opened wounds. Then the ooze returned. Currently I get one or two clear facial days followed by a flare. The rest of my body has caught up with my face. Hands and legs are the worst parts affected when my face is calm. Right now as of writing this blog entry my face, back of neck, hands and legs are a mess.

INSOMNIA is still apart of my life. Topical steroid withdrawal isn't all about the skin. Internally it has massive repercussions. But you adjust and adapt... strange how this happens isn't it?. When not at work I sleep for 3 - 4 hours during the day after a restless night. Sometimes I get the odd one or two hours nap during the night but in all honesty this is an extremely rare occurrence.

The God damn night times are horrendous as I'm sure your all aware off. I kid myself on by going to bed. Tossing and turning as I scratch myself to pieces. Morning's are always the worst with an inspection of the skin while my life saving epsom salt bath is running.  

The usual withdrawal symptoms are all present. Dry, itchy, red plastic like skin is what it's all about. I have a lump behind each nipple too (got the OK from the hospital, not a serious issue), swollen lymph nodes all over my body... even one each side of my jaw that has left me with bald spots in my beard due to scratching (I try not to shave my beard as it irritates even more if I do so), weight loss no matter how much food I eat, chronic fatigue due to the insomnia, mood swings, etc. The list goes on!.

Got a birthday party on the 8th of November that I'm looking forward too. Had to cancel attending a wedding last month as  my skin was in the pits. Fingers crossed my skin gives me some rest bite for the birthday;)

Below are some graphic images of my facial flares... you've been warned!.






















Taking it one day at a time. Hope you're all doing well out there and withdrawal is treating ya good.

Gary